THE family and friends of an "inspirational" young girl lost to a rare disease took part in their first fundraiser since becoming a registered charity.

As reported by the Journal last year, Holly Prince, from Hindley, was diagnosed with Bloom Syndrome in March 2020, which is an extremely rare condition with fewer than 300 recorded cases worldwide.

With the condition causing immunodeficiencies, respiratory problems, and a higher likelihood of developing cancer, Holly gave a courageous fight but sadly passed away last April, aged five.

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Leigh Journal: Holly and the Prince family during her battle with Bloom SyndromeHolly and the Prince family during her battle with Bloom Syndrome (Image: Holly's Hearts)

Following the tragedy, the Prince family decided to forever honour their daughter's memory by forming 'Holly's Hearts'.

Recently becoming a registered charity, its aim is to give gifts, experiences, and respite breaks to children with cancer and support other families during these difficult moments.

With a fundraising page set up following Holly's diagnosis three years ago, this has now merged with the formation of the charity and raised more than £29,000 for children with cancer.

Leigh Journal: Riders outside of the Boars Head pub on Market PlaceRiders outside of the Boars Head pub on Market Place (Image: Holly's Hearts)

As family and friends look to organise events to continue fundraising streams, a charity bike ride took place earlier this month which marked 'Holly's Hearts' first fundraiser as a registered charity.

Organised by Leigh Boars Head owner Mick Aspey, his girlfriend Sam Kedward, and Holly’s uncle Danny Prince, the trio arranged for over 70 riders to take part in the 24-mile ride.

In memory of Holly, the riders cycled for 12 miles along the canal from the Market Place pub to Old Trafford, and 12 miles back.

With huge support from the community, the event raised more than £1350 while Holly’s Hearts banners and balloons decorated the pub to celebrate the riders' return.

Leigh Journal: The Boars Head was decorated with Holly's Hearts banners on the riders' returnThe Boars Head was decorated with Holly's Hearts banners on the riders' return (Image: Holly's Hearts)

Planning to make the charity bike ride an annual event, the next 'Holly's Hearts' fundraiser is a Summer Fair held at Atherton Town FC, on Eckersley Fold Lane.

Taking place on Sunday, July 16, the event promises live music, kids' entertainment and activities, and another celebratory atmosphere.

Leigh Journal: Another fundraising event takes place this weekendAnother fundraising event takes place this weekend (Image: Holly's Hearts)